North Wales MS charity set for year ahead

Future plans and activities for MS Synergy were decided by members at the annual general meeting held alongside its September monthly gathering earlier this week.

MS Synergy is North Wales’s own independent support group charity for people with multiple sclerosis and those affected by it, such as relatives, carers, friends or anyone with any kind of interest in the illness.

At the AGM, held at Prestatyn’s Paanshee Bangladeshi Restaurant on Tuesday 15th, members approved the annual report, adopted the accounts and took important decisions about future administration and organisation. These were finalised by making some minor amendments to the constitution.

After two years as chairman, Nigel Partington had already forewarned us that he had decided it was best for him to stand down. Naturally, everyone was sorry his health had prompted that decision and sent him their best wishes along with their hopes that he would attend future gatherings whenever he felt able.Kathy Ruane

In his place, the group was fortunate to be able to elect two Co-Chairmen. These are Christine Cooper  (below) and Kathleen Ruane (right). Kathy has MS and if her surname sounds familiar, that is probably because her brother is Chris Ruane, former Labour MP for Vale of Clwyd. He served as MP for 18 years before losing his seat at this year’s general election.christine cooper_edited

The role of secretary proved to be a little more difficult to fill but was resolved with the help of some lateral thinking and ingenuity. I have been secretary for the last two years but moving to Spain in November meant that MS Synergy needed a new secretary – or did it?

With no-one putting themselves forward, the meeting decided to re-elect me (below left) as secretary to do from Spain everything that I had always done on computer in Colwyn Bay. Let’s face it, that can be done anywhere in the world with access to the internet. The one important part of the work that needs a hands-on presence in North Wales, the organisationian gravatar_edited of the monthly meetings or ‘gatherings’, was given to another committee member.

Former long-term group organiser and, for the past two years, gwawr_editedtreasurer, Gwawr Jones (below centre), was re-elected to look after the finances while Eryl Thomas (below right) Eryl Thomas_editedjoined the committee as Gatherings Coordinator.

Three remaining committee member roles were left unfilled, allowing the committee to co-opt people in the future.

With me going to be many miles away, members agreed that future general meetings and committee meetings should include a free computer-to-computer video link to make it possible and feasible for me to take an active part and to take minutes. Isn’t modern computer technology wonderful?

One last piece of re-organisation agreed by the AGM was in regard to bank payments and withdrawals. The previous constitutional requirement was for each cheque to bear two signatures from any of the three officers. An amendment passed on the night now requires two signatures from any of the officers and committee members resident in the UK. That will make the treasurer’s work a lot easier.

  • MS Synergy is a ‘local small charity’ as defined by the Charities Act. As such, it is only allowed to raise up to £5,000 a year.

 

 

 

MS is the driving force behind our move to Spain

There were a number of factors which lead Lisa and I to want to move, then to decide roughly where to go and finally to choose what we consider to be our perfect home but, without a doubt, multiple sclerosis was – and is – the main incentive.

Let me explain. Taking things in order, we realised that our present rented flat is not suitable to convert to being totally wheelchair friendly if my MS deteriorates enough for me to reach that stage. Currently, I do not use a wheelchair at home, only when I am out and about. But we had to think of what the future could hold, so we needed a place that either was already suitable or could be easily converted if the need does arise.

Secondly, we knew that my former marital home was for sale and a deal would be likely to be finalised by the summer and then I would have just six months to spend it on a new home without my benefits being affected.

So, having decided to move, we then started to look. We scoured websites like Rightmove that are popular ways for estate agents to advertise properties they have for sale but nothing seemed to match our needs.

We were getting fed up with the weather and we both wished for more sunshine. Also, we had noticed that my MS symptoms seemed to get worse as temperatures changed; more consistent weather was called for. Then, one day we were talking about our holiday two years ago when, on my November birthday, we had been sitting outside a Barcelona bar sipping Sangria in the sunshine. And that was when I suggested to Lisa that we should move to the south of Spain.

She was unsure at first as she didn’t want me to later regret leaving the nation of my birth. No such trouble for her though, as Lisa left the USA more than three years ago. Also, for the 18 years before she moved to Wales she lived in Florida so had become used to hotter temperatures. Anyway, once she was reassured about my feelings, she was as enthusiastic as I had become.

Picking an area of Spain was a little more difficult as we did not want to be far from the sea but wanted to live close to Spanish people and did not want to be surrounded by tourists. We settled on Almeria province but not the city itself, the home we found is within easy reach of a little village but only a 15 minute drive from the Mediterranean.

After looking at details of many Spanish properties online, we knew we had to take a trip out there, which we did at the end of April. It was so worth it. We knew as soon as we entered the second property that it was for us. It felt like our home and while I was sitting talking to the owner, Lisa was already working out in her mind what could go where.

Our living room in Spain looking from the back door through the wide arch into the kitchen diner. Beyond the display cabinets on the left is another wide entrance way into the hall that gives access to the wetroom and two bedrooms

Some work needed to be done before we move in but this is already in hand. We agreed the details and accepted a quote and the seller, who lives nearby, agreed to oversee the work for us. When I received my share of the money from my previous matrimonial home, we completed the purchase of our dream home that will be wheelchair accessible right from the start. Actually, we received the money into our bank account on a Friday and we completed the purchase on the Monday.

The work includes stripping out the old bathroom and installation of a wet room complete with a large shower area with a fold-down seat, fitting a new wider back door and fly screen leading from the living room out onto the decking, a ramp from the back garden up to the decking and a levelled and resurfaced walkway from the drive to the back garden. There is other work being done as well but these are the main items to make life easier for me.

It really is ideal and living in the warmth with plenty of natural vitamin D will be perfect.

As an added bonus, we even have a second bedroom so friends and relatives can stay.

Charity event in August, seaside resort in UK = clouds and rain

Just got back home from taking part in our last sponsored fundraising event before we move to Spain. Not the last event, just the last sponsored one.

This morning MS Synergy held its ‘wheel and walk’ on Llandudno promenade and the good news is that there was a pretty good turnout of walkers as well as those of us unable to walk very far and being pushed in wheelchairs. The number taking part this year was more than four times greater than last year.

Apart from raising money through sponsorship, we also took the opportunity to accept donations from people we met on the prom. I will let you know how much we raised as soon as I know.

Talking of a walk on the prom in a seaside resort town in August, it would be reasonable for you to think that we would have been blessed with sunshine and blue skies – but, sadly, this was not the case.

As is usual in the UK, the morning was heavily overcast but at least it was not windy. However, it did start to rain just as we were finishing.

The British weather was, in fact, the major factor in Lisa’s and my decision to move to Spain.

We are so fed up with rain, rain and more rain with only a rare appearance of any sunshine that we are moving to a place that has sunshine for at least 300 days a year. As for rain, where we are going, December is one of the wettest months of the year when rainfall averages just over 35 mm. And that works out at just over one mm a day. Colwyn Bay, on the other hand, has nearly 131mm in December while even its driest month, June, has almost 53mm. (All figures taken from World Weather Online statistics publicly available on the internet).

I think that the differences speak for themselves.

Although we are heading for the sun, rest assured that we are not doing so without regard to our health. We are both conscious of the damage UV can do to our skin and are fully prepared to take every precaution. Lisa, whose blood is half Sicilian, has a Mediterranean skin and she is used to the sun as, before coming to the UK, she had lived in Florida for 18 years.

By contrast, I am fair-skinned and burn more easily than I tan so sunblock will need to play a major part in my life. That goes for insect repellent as well because I was bitten a few times when Lisa and I visited the area in May but then I was not wearing any repellent.

You live and learn.